When they came into our lives, we were struggling parents filled with uncertainty and anxiety about Sissy’s health and EPP. We needed them more than they’ll ever know. From giving Sissy a new basement and bedroom to escape the sun to our incredible weekend with the San Jose Sharks. They made our entire family feel special and we cannot thank them enough. We are extremely grateful to be part of their story.

I truly believe Cheyenne’s ranch trip set up through Shadow Jumpers helped her realize that she can do anything regardless of her EPP diagnosis. When she was first diagnosed all we heard was “I can’t” and now it is all “I can,” with lots of plans on how to make it happen

for helping us re-do our failed beach vacation. This week of memories helped our son Caleb realize he is tougher than the sun and anything is possible even with his EPP

we were afraid we wouldn’t be able to provide a proper Christmas morning for our children. Shadow Jumpers wasn’t going to let that happen. They covered the cost of our outstanding medical bills and past due living expenses while also giving our children dozens of toys to open from Santa.

I decided to attend the International Porphyria Symposium to learn about other experiences with EPP.  As a single mother with limited income, attending the event represented a substantial financial commitment. To my surprise, Shadow Jumpers stepped in and covered all my travel and event costs

they decided getting our son a golf cart to help him get around our family campground for the summer would be a great idea. Deagon now gets to ride place to place with a roof over his head, minimal UV exposure, a sun proof windshield and arrives ready to place without the fear of a reaction. We’re thankful Shadow Jumpers covered the total cost of the cart.

and fully renovated our garage so our daughter Adeline could play with her brothers and sisters partially outside while still being protected from the sun. Its been the best summer ever